10th Year Celebration Day

On the 7th July 2018, Alpha-1 Awareness hosted its 10 year Celebration Day, celebrating 10 years since the founding of the charity. World-renowned speakers were invited to share their knowledge on Alpha-1 Antitrypsin Deficiency, Professor David Lomas and Professor Nedim Hadzic, as well as those conquering the condition themselves, Karen Skålvoll. The Celebration Day was hosted at Millet’s Farm Centre in Frilford, Oxfordshire, a family owned farm with food, shopping and entertainment.

The day started out with the Chair’s welcome from Alan Wooler, followed by a short video from Charity founder, Dawn Heywood-Jones, establishing the history and founding of the charity. Professor Lomas followed with an informative discussion on the pathophysiology of Alpha-1 Antitrypsin Deficiency, and the current state of finding a cure for the condition. Professor Hadzic spoke next, providing an overview of how the condition affects children, and potential areas for future research within the field.

Following a tea and coffee break, Karen inspired the audience with her story of how she was diagnosed with the condition, and went on to continue breaking world records despite it. She spoke of the sports team she founded, Alpha-1 Athlete, dedicated to educating about lung disease and Alpha-1 Antitrypsin Deficiency, and empowering those affected with the condition to continue living their lives to the fullest. She shared her most recent feat pulling fighter jets and shared stories from other experiences with her Alpha Warriors. Alpha-1 Awareness was so inspired by Karen’s story that we officially announced her sponsorship following Karen’s talk, where we presented her with a check for £1500 to sponsor Alpha-1 Athlete for the next 3 years. The charity is very pleased to help Karen and her Alpha Warriors continue their inspirational work, and looks forward to seeing them achieve their goals over the coming years.

The charity’s Parent Support Officer, Emma Wooler, followed Karen and announced the official launch of the Alphie Kid’s Club, the first club dedicated solely to the children affected by Alpha-1 Antitrypsin Deficiency. The club’s website was launched at www.alphiekids.club, where children can download colouring pages, puzzles and receive an exclusive membership pack when joining. To help kick off the festivities, the charity gave presents to the children present at the Celebration Day, including Alphie Bears made specially for the children at Build-A-Bear workshops. One child in particular, Cai, was given a special Alphie Bear for his recent efforts in raising nearly £800 for the charity by shaving his head.

After a delicious and varied lunch buffet, attendees mingled with other charity members and the specialists present, then it was time for some delicious cake! It was as tasty as it was beautiful. Even better, there were loads of leftovers to last for days!

All in all, the Celebration Day proved both informative and fun, offering members a chance to mingle with other Alphas, as well as chat with the charity Board and with Alpha specialists from across the country. The charity was pleased to spend its 10th birthday amongst valued friends, and we look forward to what the next 10 years brings!

 

 

 

 


All the photos


The Friday night evening meal.


Starting to setup the hall.


The shop get structure.


All hands on deck.


And we are open.


Our check-in desk.


Our different publications.


We are very proud of of the £25,000 cheque that we were able to give to Professor David Lomas to go towards finding a cure for Alpha-1.
These were photos from some of the fundraisers of 2017 who helped make it happen.


Our 3 new posters of Karen Skålvoll showing that you must not give in and to keep fighting.


Our exercise tops and some of our new clothing line.


Some of our shop stock.


Glyn with one of our younger guests.


Our guests starting to arrive.


A message from Alpha-1 Global.


Sadly Dawn Heywood-Jones was not able to be with us due to health issues.
Dawn did send us a short video which we played on the day where she talked about how our charity was founded.


Professor David Lomas doing a talk on his research into finding a cure for Alpha-1.


Karen Skålvoll telling us about her work as ‘Team Alpha-1 Athlete’ and ‘Alpha-1 Warriors’ where she helps to bring awareness of Alpha-1 to the world.

Professor Nedim Hadzic talking to us about children affected by Alpha-1.

Emma Wooler introducing the all new Alphie Kids Club.

Alan Wooler with a cheque for £1,500 for Karen Skålvoll.  The first of many!


Alan Wooler & Karen Skålvoll


Lunch is served.

Glyn and Andi


Our fun wonky cake.


Alan Wooler in front of the Board of the charity cutting the cake.


While we were inside, the childcare took the children outside for fun, games and plenty of fresh air.


Lots of fun was had seeing all of the different animals on the farm.


At the end we gave the children their gifts.  Alphie Bear went down very well with all of the children.  Alphie Bear has been a tradition of our for 9 years.

Cai Bull raised £720 for our charity by shaving his head 1 week before hand.

We presented Cai a special certificate as well as his Alphie Bear.
Such an inspirational young man.

 

All the Board of Alpha-1 Awareness would like to thank all that attended our special day and shared the day with us.