About Us

Alpha-1 Awareness UK is a charity formed to provide information and support to sufferers of alpha-1 antitrypsin deficiency. We maintain close links with experts and organisations associated with the condition, including European Alpha groups, pharmaceuticals and clinicians. Our primary objective is to improve the understanding of Alpha-1 in both patients and medical professionals, as well as to provide support for Alphas, their carers.

We were the first Alpha-1 group to get registered with the Charity Commission for England and Wales (1125467) and the also the first for full registration at the Office of the Scottish Charity Regulator (SC041100).

Our website provides extensive information about the condition, how it might be detected and discussion of the treatments and therapies currently available. We also offer links to more detailed information about alpha-1 antitrypsin deficiency.

If you would like to become a member of our charity, please visit our membership page.
If you would like to send a donation to us, please visit our donation page.

Objectives

  • To improve the understanding of alpha-1 antitrypsin deficiency (AATD)
  • To publicise AATD to medical professionals
  • To work with medical and patient organisations to raise awareness of the condition
  • To build a national network of patients
  • To become a pressure group to increase research and the availability of successful treatments
  • To develop a platform for patient support.

The Charity Board

  • Alan Wooler
    Chairman, Merchandising Manager, IT Support
  • Andi Osborn
    Trustee
  • Cori Ruktanonchai
    Secretary
  • Emma Wooler
    Parents Support and Trustee
  • Glyn Cockaday
    Facebook Administrator
  • Jackie Osborn
    Membership Secretary

 

Patrons

  • Professor Sabina Janciaskiene
    Hanover Medical School
  • Professor David Lomas
    Dean of Medical Sciences, University College London
    Honorary Consultant Physician at Addenbrooke’s and Papworth Hospitals.