We always do what we can to tell people about Alpha-1 and what it is all about. Sometimes though you need something that you can read for yourself in your own time, give to family members or take to your doctor so they too can learn more.
We are very proud to be able to give you in digital or printed form a set of different booklets/leaflets that should help answer many questions you have about Alpha-1. Most of the guides are in A5 size and have been created with as little technical jargon as possible.
If you click on any of the guides below, it will launch the .pdf version in a new window so that you can read and even print them off. If you would like to get some printed copies of the booklets, please use the form at the bottom of this page. If you have affected children, tell us their ages and we will include the appropriate booklets for you.
This gives information on things you can do to help your body stay stronger for longer. It explains things like exercise, diets and every-day items to stay away from which may harm your lungs.
Created for medical professionals that have a patient who is an Alpha who would like to better understand how they are affected. If your doctor does not know much about Alpha-1, this is the booklet for them.
We have also created a booklet for parents of Alpha children & a leaflet for Playgroups, Schools and other groups/people who look after Alpha children:
This booklet is intended for parents of children affected by Alpha-1 of all types, and has been designed as a stand-alone booklet to explain the background of Alpha-1, how the condition is inherited, and what positive lifestyle changes parents can implement for their children to promote the healthiest lives possible.
This is the perfect booklet to give to extended family members like grandparents who need to know about the condition without reading several booklets. It can also be read along with our other booklets to get a broader understanding of the condition
This ‘guide’ was created for people who look after children. This could be a Pre-School, a school, after school care all the way to private day care.
This 2-page A5 leaflet give a general overview of what Alpha-1 is and things to be careful of that may harm and Alpha like fumes and pollution.
We also have booklets for children to help them understand the condition.
The 3 booklets below were created by the Alpha-1 Foundation in America. We have been granted the rights to reproduce them with some edits so they are more inline with terminology used in England. If you would like to see the original booklets, you can find them here: www.alpha1.org/Alphas-Friends-Family/Publications/Alpha-1-Kids-Books
‘A to ZZ’ (for 4 – 7 year olds)
If you have an Alpha child between the ages of four and seven then you may find this booklet ‘Alpha 1-Antitrypsin Deficiency Alphabet From A to ZZ’ a great help in explaining the condition to them. Despite the long title the booklet is easy to read and quite upbeat. It may also be helpful to non-Alpha children in explaining the illnesses of their older relatives.
‘Not the only Alpha-1’ (for 8 – 11 year olds)
For older children who have a better understanding of things. This can be read to a child by an adult or read by the child themselves. There may be some terminology they are not aware of that an adult would have to explain.
This is only available in print, we do not have a digital version.
If you would like to have some printed versions sent to you in the post, please fill in the below form giving us your details. There is no charge to receive any booklets from us, you are also not signing up for anything by giving us your details.
(In the below form it asks you how many packs you would like. A pack is a folder holding the following items ‘Newly Diagnosed‘, ‘Living with Alpha-1‘ & ‘Diagnosis & Treatment‘. It does not include any of the children’s books as they are only sent out to people who tell us they have children and what ages they are.)
Form to request printed versions