The Children’s Liver Disease Foundation (CLDF) is starting a project to raise awareness of childhood liver disease. Alpha-1 antitrypsin deficiency is one of the major contributors to severe liver disease in newborn children.
Here is what the CLDF say:
“You may know that a huge part of CLDF’s strategic plans is to raise awareness of childhood liver disease and with that in mind we have introduced something new this year. We are focusing on a different liver condition each month and we wondered if you would like to share your experiences with others.
It doesn’t have to be a long piece; it can be a short blog or just a few sentences on a part of your journey that you feel comfortable sharing with others. You’ll be surprised at just how powerful your words can be to another family looking for someone to relate to.
We will also be looking at the services CLDF offers so if you’d prefer, you can write about something more general – maybe how useful you found the CLDF literature you received at diagnosis, or how families’ days or other events have helped you and your family. If you’d like ideas on what to write, take a look at some previous blogs written by others on our website…
for example: http://www.childliverdisease.org/…/29/A-year-on-from-diagno…
We’d really like to hear from you and it’ll be great to share your story with others. You can send your story to firstname.lastname@example.org or if you’d like to talk to us first, give us a call on 0121 212 6023.
We look forward to hearing from you.
With best wishes,
The CLDF Team”