Rare Disease UK will be hosting the second EUROPLAN Conference on Tuesday 24th June at NCVO, Society Building, 8 All Saints Street, London N1 9RL.
In November 2010, RDUK hosted a conference as part of the EUROPLAN project, which looked at developing common standards to inform the development of national plans across the EU.
This project has now entered its second phase and we are holding another conference which is one of around 20 taking place across Europe.
RDUK will use the conference as an opportunity to examine the content of the UK Strategy for Rare Diseases and the national plans for implementation and look at areas which have been omitted or could be improved.
EUROPLAN is an opportunity for patients and for those working in the field of rare conditions to input into the policy debate around the commissioning, organising and coordinating of services in the UK. The conference is open to all stakeholders who are interested in rare diseases and we hope to include the involvement of officials from the UK’s health departments.
For more information on the EUROPLAN project, please follow the link:http://www.europlanproject.eu/_newsite_986989/index.html
Attendance is free and registration will open soon.