Two major announcements were made at the patient Information Day held in Glasgow.
The first was that Professors Sabina Janciaskiene and David Lomas have become patrons of the Alpha 1 Awareness UK charity. Professor Janciauskiene is based at the Hanover Medical School and she is a world famous researcher into alpha1 antitrypsin deficiency. Professor Lomas is based at the University of Cambridge where he is Professor of Respiratory Biology and a Honorary Consultant Physician at Addenbrooke’s and Papworth Hospitals.
The second is that after many years of advocating replacement (augmentation) therapy in the United Kingdom this charity has succeeded in persuading the pharmaceutical manufacturer Talecris to assist in providing information to medical specialists who request it on the use and expected clinical outcomes of this treatment.
It is hoped that treatment may be available under the Named Patient Procedure of the Medicines and Healthcare product Regulatory Agency.
The following link will enable you to download a fuller report on the Named Patient Sessions (131Kb PDF) held on Saturday 11th June 2011.