There are approx. 100 known Alpha 1 patients in Scotland. The main centre of knowledge and expertise for Alpha 1 in Scotland is at the research group headed by Prof. MacNee at Edinburgh University. This group has carried out various Alpha 1 related research trials.
The Scottish Intercollegiate Guidelines Network. SIGN is a publicly funded organisation that develops evidence-based clinical guidelines for health care professionals in Scotland. Further details on SIGN can be found on the website www.sign.ac.uk. Alpha-1 Awareness is a member of the SIGN patient network. Please contact us if you wish to be consulted on commenting on the guidelines.