On Sunday 27th September 2020 we will be holding our next Information Day in Birmingham (full address is at the bottom of the page). We will have a variety of talks about research, treatments and fitness. It is a great opportunity to meet and mingle with other Alphas from around the country and chat with medical professionals. The event will start with tea and coffee at 9:30 am and the first talk will start at 10 am, it will finish by 4:30 pm. Childcare will be available on site (the children will join us for lunch) so you won’t need to worry about them.
This event is FREE to attend, but if you would like to make a donation to help support our charity, you’re welcome to do so at JustGiving.
To request tickets, please fill out the below form. Once we receive your request, we will contact you to confirm and discuss further any other details such as dietary requirements and childcare.
Speakers & Professionals
We are very fortunate to have several very influential people coming to our event. They will be able to share some of their knowledge of Alpha-1 to all that join us on the day.
After the formal talks, we will ask our specialist guests and speakers to join you on informal tables so you can talk to them. How often do you get the chance to talk to an Alpha-1 Specialist in a relaxed environment?
Professor David Lomas
Vice-Provost Health of UCL (University College London) & also Head of UCL Medical School.
David will be talking about his research, finding a cure for Alpha-1.
Prof. Dr. Sabina Janciauskiene
Research Group Leader – Department of Pulmonary and Infectious Diseases
German Center for Lung Research (DZL) – Hannover University School of Medicine
Sabina will be giving a talk on her research in Alpha-1.
Professor Bibek Gooptu
Professor of Respiratory Biology at University Of Leicester.
Bibek also works at Glenfield Hospital in Leicester & the Alpha-1 Clinic at the London Royal Free.
Bibek’s talk is to be confirmed
Team Alpha-1 Athlete, which is a sports team that works to educate about lung disease and Alpha-1 Antitrypsin deficiency in particular, through participation in sports events, speeches and participation in patient activities.
The team aims for inclusion in all sports for people with lung diseases and recognition of O2 deficit as a Paralympic criteria.
Karen will be talking to us about how important it is to exercise and to keep your lungs strong.
Wills Hughes Wilson
Head of Patient Access and Commercial Planning,
Mereo BioPharma Group plc
Clinical Operations Lead,
Mereo BioPharma Group plc
Wills and William will be updating us on their company’s Astraeus Study that is currently running.
We will be holding our event at Holiday Inn Birmingham M6, Jct.7, the full address is:
Chapel Lane, Great Barr, West Midlands, Birmingham, B43 7BGClick to load Google Maps
The charity are hosting their AGM on Saturday 26th at the same venue. If you able and would like attend, click here.
On Saturday night the Charity Board members will be staying overnight at the hotel so we can setup for the Information Day on Sunday morning. If you would like to stay on Saturday night, please visit the hotel website by going here. The charity is not be able to assist in any room bookings or costs, you will need to do this directly with the hotel themselves.
If you do book a room and are eating at the hotel, you are more than welcome to join us in the dining area from 6 pm.
There are other places to stay overnight in the area with varying prices which we found on Booking.com (there are other hotel reservation websites out there). We have saved a link to a live search for the area for the Saturday night which you can access here (please note that the search is for 1 person for 1 night, but you can alter this on the web page).
If you would like to come to our Info Day, please fill in the below form. We aim to respond to all requests requests within 4 working days.