Welcome to Alpha-1 Awareness, a UK Charity that Supports people with AATD

AATD or Alpha-1 Antitrypsin Deficiency is a lack of the protein alpha-1 antitrypsin (AAT) which is produced in the liver. The main job of AAT is to protect the lungs. A deficiency can lead to life-threatening lung and/or liver disease.

The first signs and symptoms of lung disease caused by alpha-1 antitrypsin deficiency usually appear between ages 20 and 50.
The symptoms are:

  • shortness of breath following mild activity
  • reduced ability to exercise
  • wheezing

About ten percent of infants with the deficiency show signs of liver damage at birth. Fifteen percent of adult Alphas also develop liver disease.

Only a small fraction of alpha-1 antitrypsin deficient patients in the United Kingdom are aware of the causes of their condition.

Our charity is run by non-paid volunteers who all are either affected by Alpha-1 or have a family member who is. We all have a connection to Alpha-1 and this isn’t our day job. We have a real passion for the charity and for supporting people who are affected, their families and friends.

This website was created so that people can learn more about Alpha-1 and how to get support.  We produce our own booklets which people can download and view digitally (click here) and even request that a set be sent to them in the post for free. We have a private Facebook Group where we help to support people in a safe environment. If you would prefer one on one support, then you can email us directly on ‘support@alpha1.uk‘ or use our Contacts Us Form. We care, we want to help those affected, their families and their friends. We are also proud to be the only UK charity that is donating money to go directly to the research of a cure.

 

 


 

Fundraising

We would like to thank all those that raise funds for us, without you, we would not have a charity & we would not be able to support those affected with Alpha-1 and their families.
Below are 2 events that are happening in 2019, if you are interested in doing a run in London or a hike in Derbyshire, click on their links to learn more.

British 10K Run

Date: Sunday 21st July 2019
Location: London

The British 10K is well known as the world’s greatest road race route. Passing through the heart of London you’ll see many of the capital’s most iconic landmarks.  You’ll also run past the True Geographical Centre of London, down closed Regent Street, the Strand and Embankment, and get the best view across the river of the London Eye.

If you are interested in running in this race for free, click here to learn more.

TrekFest ~ The Peaks

Date: Saturday 31st August 2019
Location: Hope Valley, Derbyshire (S33 8RZ)

TrekFest is the UK’s ultimate trekking challenge. Take on an epic trek through open countryside in the Peak District National Park, Derbyshire walking side by side with hundreds of like-minded individuals all with the same goal in mind – to cross the finish line.

If you would like to take this trek on along with us, click here to learn more.

Fundraisers

Please take a moment to read what our fundraisers are doing and if you are able, to donate something to them.

Pauline Laybourne

“On 17 August 2019, my husband Colin Laybourne and our friend Rae Davies will be walking along the Llanberis Path to the summit of Snowdon, North Wales to raise much needed money and awareness of Alpha 1 Antitrypsin Deficiency (AATD). “

 

To learn more, click here.

 

 


 Latest News

 

Bobby’s Story

My daddy died when I was 3 years old. I remember him really well from our home in Ashby-de-la-Zouch. I remember playing with him and him telling me things that were really interesting. It makes me sad that he is not here anymore to enjoy stuff with m
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AAW Board Member Dies

Wendy Rogerson died in her partner’s arms at their home in Bristol in the early hours of Friday.  Wendy was a member of the board of Alpha 1 Awareness UK.  Her special field was assisting people with the complexities of Disable Living Allowance
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Alpha-1 Alliance – campaign update

The Alpha-1 Alliance is campaigning for a highly specialised service within the NHS for patients with severe Alpha-1 antitrypsin deficiency.  We’re calling on the NHS to set up three or four specialist Alpha-1 centres in hospitals across England that
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Alan Heywood-Jones speaks to ELF on Alpha Federation

The European Lung Foundation has published an interview with Alan Heywood-Jones, the chairman of the Alpha Europe Federation – as well as chairman of our very own charity (Alpha-1 Awareness UK). Alan discusses some of the issues involved with h
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Smoking Cessation

The European Respiratory Society (ERS) has established a Task Force which is working to produce a consensus statement on Smoking Cessation in COPD and other pulmonary disorders in smokers who are not willing to quit. To assist the work of this group,
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Fourth International Alpha Patients’ Congress

The 4th International Alpha-1 Patients’ Congress will be held in Barcelona on the 12th and 13th of April 2013. The congress has been timed to overlap an International Research Conference on Alpha-1 also held in Barcelona on the 11th and 12th of
Read More

Alpha-1 antitrypsin deficiency makes Parliament; Questions in the House

For the first time in nearly a decade, Alpha-1 Antitrypsin Deficiency (AATD) has been mentioned in the House of Commons, by Mark Pawsey, Conservative MP for Rugby. His much-welcomed question came as part of the “Business Questions to the Leader
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Professor Lomas to join UCL

Professor David Lomas is set to join University College London as Dean of the Faculty of Medical Sciences and Chair of Medicine from 1st January 2013. Professor Lomas is Professor of Respiratory Biology in the University of Cambridge and Honorary Con
Read More

This website is run by Alphas and their carers. We do our very best to ensure that all information shown here is up-to-date and accurate. However, you should always consult your own GP or other medical professional if you have the slightest concerns about your health.