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Alpha-1 Antitrypsin Deficiency Support
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      • 2018
        • James Balson – 7th April 2018 – Prague Half Marathon
        • Louise Balson – 7th April 2018 – Prague Half Marathon
        • Stephanie Kimble – 15th March 2018 – Milton Keynes Festival of Running 5K
        • Gemma Vivian – 22nd April 2018 – The London Marathon
        • Andrew Stringer – 20th May 2018 – Richmind Marathon
        • Cai Bull – Headshave – July 2018
        • British 10K Run – July 2018
        • Alistair Jagger – 13th July 2018 – London to Paris of bike
        • TrekFest (The Peaks) – September 2018
        • John Gareth Trainor – September 2018 – Cycling the Pyrenees (all of them!)
        • Helen Moss – 27th October 2018 – Eastbourne Beachy Head 10K
      • 2017
        • Paul Amos – 14th May 2017 – Tandem Skydive
        • Cori Ruktanonchai ~ 3rd June 2017 – Stockholm Marathon
        • Paul Seager – 17th June 2017 – 45 Fell Walk
        • British 10K Run – 9th July 2017
        • Sharon Simpson – 2nd September 2017 – 25k Trek Fest (Peak District)
        • Matt Rowley – Runner
        • James Balson – 15th October 2017 – Amsterdam Half Marathon
        • Katie Rigby – 28th October 2017 – Kernow Destroyer
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Lifestyle

Smoking

Don’t – give it up.

Smoking is obviously extremely dangerous for any person with respiratory problems. Clinical studies show that alpha-1 antitrypsin deficiency causes much more severe disease in cigarette smokers than in nonsmokers. In data based on the Swedish population, among 20 year-old Pi ZZ individuals who smoke, 50% of them will die by age 40; if they don’t smoke, the 50% survival age is increased to 60. This compares to a 50% survival age of over 70 years for all 20 year-olds.

There is help available from your GP and elsewhere including No Smoking Day.

Exercise and Diet

Making the most of the lungs you have is very important. Thus exercise and diet are key to getting the most out of life. Walking and exercise such as golf are good steady regimes. Regular exercises can be learnt on a Pulmonary Rehabiliation course.

Climate and Infections

Most alpha-1 sufferers are very susceptible to chest infections. Thus the cold, wet and windy winters of northern Europe do not help. Some people have moved to southern Spain, whilst many others make the most of cheap holiday deals for Winter Sun.

Environment and Allergies

Chest infections and allergies are also closely associated with allergies to animals such as cats, dogs and horses and even birds. Keeping the home as dust-free as possible, even having hard floors rather than carpets, often helps some patients. It is worth giving serious consideration to the domestic and local environment, discussing it with medical experts and acting accordingly.

Treatment & Therapies

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